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Okay, to get started, I will tell you all about myself.

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I'm just going to be blunt about this.. I have Ichthyosis (ick-the-oh-sis)
I not surpised that you don't know what it is. not many people do.
Ichthyosis basely looks like a really bad sunburn, red skin and flacking and iching. it does Not feel like a sunburn though.

There are Many many people with ichthyosis all over the world
I however have one of the rearest forms of ichthyosis
No I am not showing off, it's just a fact.
they're are 8 known people with my form of ichthyosis.
I've met two. one of them happens to be one of my best friends! whee

speaking of friends...
you may be surpised at how many friend a person like me can have.
Quite a few infact . I love them all! they treat me like anyother person. they hug me, shake hands with me, include me in everything. 3nodding Yet they are still awear to the fact that I am different.When I first met some of my friend they did give me that What-is-wrong-with-her-look stare
I have a very in-you're-face personality which make getting over the way I look so much easier for some people.


If you have some sort of disorder, do NOT let it define!
Just make it clear.